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We’re only a third of the way through the month…

Hi All! In honor of it being Fibro Awareness month, I felt like laying some facts about fibromyalgia and gaslighting. More common than you think and even the smart ones fall for our brains tricks.

First off, fibromyalgia is like the ninja of chronic illnesses—it’s stealthy, it’s everywhere, and it hits you when you out of the blue. One day you’re fine, and the next, you feel like you’ve been hit by a truck made of exhaustion and pain.

Oh, and let’s talk about the diagnosis game. Picture yourself as a contestant on a really crappy game show where the prize is knowing why your body hates you. Your doctor throws every test in the book at you, from blood work to MRIs, all while you’re sitting there thinking, “Can we speed this up? My body feels like it’s been through a wood chipper.” Every new med comes with a side effect that you have to chase with another pill, its a cycle.

And here’s a fun fact: fibromyalgia isn’t just about pain. Nope, it’s a whole package deal. You get fatigue that makes you feel like you’ve run a marathon on zero sleep, brain fog descends to wreak havoc, and sleep problems that make you envy a cat’s ability to nap anywhere, anytime.

But wait, there’s more! Fibromyalgia loves company. It’s best buds with conditions like irritable bowel syndrome (IBS), migraines, and depression, because why deal with one pain in the butt when you can have a whole party of them?

Picture this: you’re dealing with this condition called fibromyalgia, where you’re in pain all over, tired as hell, and your brain feels like it’s stuck in a fog. But here’s the kicker: there’s no fancy test that says, “Yep, you’ve got fibromyalgia!” So, you’re left playing a guessing game with your doctor, ruling out everything else under the sun.

Now, imagine dealing with all that uncertainty. You start wondering, “Am I just making this up? Is my body punking me?” Do you know how many times in a day I try and tell myself that I don’t hurt? It’s like gaslighting yourself—convincing yourself that maybe the pain is all in your head because there’s no lab result to back it up.

And let’s not forget the joy of visiting the doctor’s office. You pour your heart out about how much you hurt, how tired you are, and how your brain feels like it’s on vacation. You bring witnesses, you show how you’ve logged all the symptoms. But instead of a pat on the back, you get a shrug and a “Well, your tests look fine.” or ‘Well that’s a common symptom of Fibro’

So, yeah, it’s a real treat trying to convince yourself and others that what you’re going through is legit when there’s no shiny test result to prove it. Its why they call it an invisible illness. But fibromyalgia is as real as it gets, even if the medical world hasn’t quite caught up yet.
Thats it for tonight guys, take care of yourself and each other

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Fibromyalgia, Bipolar, and me…

Hi Guys!
I’m actually writing this out before hand because my endless streams of consciousness get confusing and I wanted to give you all some facts with your funny today (or MY funny, I’m not going to presume to know how you feel about things). As I’ve talked about in detail, I suffer from both Bipolar and Fibro among some other alphabet disorders and such. Part of the challenge when you suffer from multiple illnesses is difficulty TREATING the illness has a whole because you are so busy trying to battle symptoms
Ah, the overlap symptoms, where Fibromyalgia and Bipolar Disorder play their favorite game of “Fibro, flare, bipolar or unidentifiable illness?” Let’s dive into this delightful pool of confusion, shall we?

  • Fatigue Fiesta: Is it the fibro fog or the bipolar brain drain? Who knows! One day you’re bouncing off the walls with energy, the next you’re contemplating the physics of whether it’s possible to sleep while standing up. I’m talented enough to get both in the same day. I know, don’t be jealous lol Why choose between chronic fatigue and mood-induced exhaustion when you can have both, right? When you are dealing with this fatigue, it touches so many other parts of your life, and being tired all the time ruins your quality of life.
  • Pain Parade: Is it fibro spreading its discomfort like peanut butter on toast, or just your bipolar mood swings throwing a tantrum in the form of physical agony? Who needs targeted discomfort when you’ve got a buffet of sensations to keep you guessing? Every new ache becomes a game of medical Clue: “Was it Colonel Fibro in the living room with the pain stick, or Professor Bipolar in the kitchen with the mood swing?” It’s like living in a mystery novel, except the plot twists are your own nerve endings.
  • Gaslighting: Oh, don’t even get me started. Before you can say “It’s all in your head,” we’ve already played that mind game with ourselves a hundred times over. And when someone finally agrees with the doubts we’ve been wrestling with, it’s like a twisted validation that only makes things worse.
  • Take my cardiac arrest saga, for example. My heart decided to play hopscotch with its rhythm, and each fluttery beat had me convinced it was just another fibro flare-up. So, I shrugged it off, attributing it to the usual suspects. Turns out, it was a serious problem hiding in plain sight, but hey, who needs hindsight when you’ve got a PhD in self-gaslighting, right?
  • So, here’s to the dangers of doubting your own symptoms and the perils of playing doctor with Dr. Google. Because when it comes to your health, it’s better to be safe than sorry – even if it means admitting that sometimes, you don’t have all the answers.
  • Sleepless Slumber Party: Can’t sleep? Welcome to the club! With both fibro and bipolar on the guest list, your nights are a delightful mix of tossing, turning, and contemplating the meaning of life at 3 AM. Is it the fibro’s fault for making your bed feel like a bed of nails, or is it the bipolar’s insistence on turning your brain into a 24/7 circus of thoughts? Sleep is overrated anyway, right? That’s why sticking to a routine is essential. I sleep ok finally, but I had to change a lot, I’m in bed by 9pm 90% of the time because I changed my routine to what fit me best. For the life of me I CANNOT sleep past 4 am so I have to adjust my bedtime accordingly. As I said, listen to the natural rhythm of your body as much as you can
  • Mood Swing Shindig: Ah, the pièce de rĂ©sistance of symptom overlap! One minute you’re as giddy as a kid in a candy store, the next you’re contemplating whether it’s socially acceptable to cry into your cereal. Is it the fibro fog clouding your emotions, or is it the bipolar rollercoaster taking you on a wild ride through the valleys of despair and the peaks of mania? Who needs emotional stability when you can have a mood swing buffet? Being in a mixed episode for a prolonged period of time, I can’t hold on to the ride and bouncing between the highs and lows is leaving me bruised and bewildered
  • So, dear patient, welcome to the wonderful world where fibro and bipolar team up to keep you guessing and your doctors scratching their heads. Who needs clarity when you can have a medical mystery novel written by the masters of chaos themselves? Enjoy the ride!

Be kind to yourselves, and each other!

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…. survey says… FLARE!

Hey gang. I don’t have much to say today because today is a heavy pain day but I think tomorrow will be better. Well it will be because I said so and its my birthday and I intend to make it my bitch. Pain be damned I have shit to do! I even got whipped cream because I was going to make myself some birthday cupcakes, but I forgot to get the cupcakes. You know what’s really good? Apple cinnamon whipped cream, you make it with, DAMNIT GEORGE

Anyway, with my flare kicking my ass I haven’t been mustering up the energy to do anything other than put my head down and survive the last few days. I had plans to mow the yard but had to be alone this afternoon and we try and make sure he’s here if I’m outside. I might try for it tomorrow morning, which I know is dumb to do on my birthday but it gives me a deep sense of peace.
My leg/hip is the main source of problems. Its the side that took the brunt of the impact from the car accident, but its more front of my thigh. Its so weird, there’s got to be exposed nerves in there. As anyone with fibro will tell you, we’re limited in options of what even has a chance of working, but I’ve purposely limited my choices further. I’ve recently found that any ache or new pain I have brought to my doctors attention has gone very similar to this:
So, what brings you here today

Well I have a new ache, its (there’s a number but we’ll use my leg for this example), its usually at maybe a 2 or 3, like enough of an ache in the background to notice, but not to do anything about but recently it hasn’t gone below a 5 and will frequently jump up to a white hot eleven with no notice and its so severe I will fall down because of it, like just an absolute blinding pain, almost like somethings brushing against a nerve’

I swear she didn’t even look up, just nodded and put info into a chart.

Yes, I’m sorry, that’s part of fibro from what I understand, have you tried ice or this med or that or a combo…

Look ma’am I’ve had fibro for 16 years, I KNOW fibro pain, this is NEW.
Its fine. She’s probably right. I just feel like I’m not being heard and it adds to the pain and frustration until I’m walking around like a boiling tea kettle. But we’re managing. We got up. We ate something. We made a number of new products and we researched how to make 10 more.
Progress, any meaningful progress anyway, doesn’t happen over night, but it happens. I know this. I have seen it. I’ve done it. Just keep pushing forward my friends, its all we can do. Every once and a while reach your hand out, whether in need to or offer assistance, people care. You matter.
Tomorrow will be a good day. Til next time, stay kind to yourselves and each other.