Tag: depression

Uncategorized

Fibro Fog…

Jo1 Comment


Today I’m picking a symptom to discuss that I have found particularly difficult and vexing, Fibro Fog, where everything you were JUST thinking about disappears into a mist. I think all the evaporated thoughts are hanging together, in the air, and we just have to hope they blow by us again close enough for us to hold on to and actually implant in our brains. I’m not talking forgetfulness I’m talking if you don’t write it down its already water vapor lol. I can hear you now, ‘but can you give us any examples that are entertaining as well as informative?’



Of course, who do you think you’re talking to? No I’m really asking, because I forgot lol just kidding.

Imagine your brain decided to take a leisurely stroll through a dense fog, but instead of enjoying the tranquility, it got lost, took a wrong turn at Albuquerque, and ended up in a carnival funhouse where all the mirrors distort reality. That’s fibro fog for you, the mischievous gremlin that hijacks your thoughts and turns your thoughts and ideas into a wacky, unpredictable carnival ride.

Picture this: You wake up in the morning, ready to conquer the day like a boss/Queen/Goddess slaying everything in your path, only to realize your brain is still in snooze mode, mumbling something about needing more coffee before it can even consider joining the party. Its there, its just on a delay if you will, like they use on broadcast tv before anything live they have it on like a 10 second delay with someone on the button in case someone lets out curse words best kept to themselves? When fibro fog happens to me I feel like I’m hearing everything being said but it doesn’t make sense in my head, it takes me minutes to process the information I am given, so we will have had a full discussion but in truth I don’t even understand what you said until 10 minutes later. That means any clarifications I might need I’m already too late to ask, so I will convince myself I did it wrong. I’ll find myself standing in front of the fridge, wondering why on earth I opened it in the first place, while my keys I was searching for a few minutes ago mock me from the depths of my purse, hiding in plain sight.

Trying to hold a conversation becomes a high-stakes game of mental acrobatics, where you’re juggling words like a circus performer, desperately hoping they’ll land in the right order. Suddenly, your train of thought gets derailed faster than a toddler on a sugar rush, leaving you stranded at a mental station with no idea where you were headed.

In essence, fibro fog turns your brain into a whimsical, slightly dysfunctional amusement park, where every thought is a rollercoaster ride and every memory a slippery slide. So, next time you encounter someone battling this quirky phenomenon, just remember – they’re not lost, they’re just taking the scenic route through the carnival of their mind.

Til next times guys, stay kind to yourselves, and each other!

Uncategorized

We’re only a third of the way through the month…

JoLeave a comment

Hi All! In honor of it being Fibro Awareness month, I felt like laying some facts about fibromyalgia and gaslighting. More common than you think and even the smart ones fall for our brains tricks.

First off, fibromyalgia is like the ninja of chronic illnesses—it’s stealthy, it’s everywhere, and it hits you when you out of the blue. One day you’re fine, and the next, you feel like you’ve been hit by a truck made of exhaustion and pain.

Oh, and let’s talk about the diagnosis game. Picture yourself as a contestant on a really crappy game show where the prize is knowing why your body hates you. Your doctor throws every test in the book at you, from blood work to MRIs, all while you’re sitting there thinking, “Can we speed this up? My body feels like it’s been through a wood chipper.” Every new med comes with a side effect that you have to chase with another pill, its a cycle.

And here’s a fun fact: fibromyalgia isn’t just about pain. Nope, it’s a whole package deal. You get fatigue that makes you feel like you’ve run a marathon on zero sleep, brain fog descends to wreak havoc, and sleep problems that make you envy a cat’s ability to nap anywhere, anytime.

But wait, there’s more! Fibromyalgia loves company. It’s best buds with conditions like irritable bowel syndrome (IBS), migraines, and depression, because why deal with one pain in the butt when you can have a whole party of them?

Picture this: you’re dealing with this condition called fibromyalgia, where you’re in pain all over, tired as hell, and your brain feels like it’s stuck in a fog. But here’s the kicker: there’s no fancy test that says, “Yep, you’ve got fibromyalgia!” So, you’re left playing a guessing game with your doctor, ruling out everything else under the sun.

Now, imagine dealing with all that uncertainty. You start wondering, “Am I just making this up? Is my body punking me?” Do you know how many times in a day I try and tell myself that I don’t hurt? It’s like gaslighting yourself—convincing yourself that maybe the pain is all in your head because there’s no lab result to back it up.

And let’s not forget the joy of visiting the doctor’s office. You pour your heart out about how much you hurt, how tired you are, and how your brain feels like it’s on vacation. You bring witnesses, you show how you’ve logged all the symptoms. But instead of a pat on the back, you get a shrug and a “Well, your tests look fine.” or ‘Well that’s a common symptom of Fibro’

So, yeah, it’s a real treat trying to convince yourself and others that what you’re going through is legit when there’s no shiny test result to prove it. Its why they call it an invisible illness. But fibromyalgia is as real as it gets, even if the medical world hasn’t quite caught up yet.
Thats it for tonight guys, take care of yourself and each other

Uncategorized

Fibromyalgia, Bipolar, and me…

JoLeave a comment

Hi Guys!
I’m actually writing this out before hand because my endless streams of consciousness get confusing and I wanted to give you all some facts with your funny today (or MY funny, I’m not going to presume to know how you feel about things). As I’ve talked about in detail, I suffer from both Bipolar and Fibro among some other alphabet disorders and such. Part of the challenge when you suffer from multiple illnesses is difficulty TREATING the illness has a whole because you are so busy trying to battle symptoms
Ah, the overlap symptoms, where Fibromyalgia and Bipolar Disorder play their favorite game of “Fibro, flare, bipolar or unidentifiable illness?” Let’s dive into this delightful pool of confusion, shall we?

  • Fatigue Fiesta: Is it the fibro fog or the bipolar brain drain? Who knows! One day you’re bouncing off the walls with energy, the next you’re contemplating the physics of whether it’s possible to sleep while standing up. I’m talented enough to get both in the same day. I know, don’t be jealous lol Why choose between chronic fatigue and mood-induced exhaustion when you can have both, right? When you are dealing with this fatigue, it touches so many other parts of your life, and being tired all the time ruins your quality of life.
  • Pain Parade: Is it fibro spreading its discomfort like peanut butter on toast, or just your bipolar mood swings throwing a tantrum in the form of physical agony? Who needs targeted discomfort when you’ve got a buffet of sensations to keep you guessing? Every new ache becomes a game of medical Clue: “Was it Colonel Fibro in the living room with the pain stick, or Professor Bipolar in the kitchen with the mood swing?” It’s like living in a mystery novel, except the plot twists are your own nerve endings.
  • Gaslighting: Oh, don’t even get me started. Before you can say “It’s all in your head,” we’ve already played that mind game with ourselves a hundred times over. And when someone finally agrees with the doubts we’ve been wrestling with, it’s like a twisted validation that only makes things worse.
  • Take my cardiac arrest saga, for example. My heart decided to play hopscotch with its rhythm, and each fluttery beat had me convinced it was just another fibro flare-up. So, I shrugged it off, attributing it to the usual suspects. Turns out, it was a serious problem hiding in plain sight, but hey, who needs hindsight when you’ve got a PhD in self-gaslighting, right?
  • So, here’s to the dangers of doubting your own symptoms and the perils of playing doctor with Dr. Google. Because when it comes to your health, it’s better to be safe than sorry – even if it means admitting that sometimes, you don’t have all the answers.
  • Sleepless Slumber Party: Can’t sleep? Welcome to the club! With both fibro and bipolar on the guest list, your nights are a delightful mix of tossing, turning, and contemplating the meaning of life at 3 AM. Is it the fibro’s fault for making your bed feel like a bed of nails, or is it the bipolar’s insistence on turning your brain into a 24/7 circus of thoughts? Sleep is overrated anyway, right? That’s why sticking to a routine is essential. I sleep ok finally, but I had to change a lot, I’m in bed by 9pm 90% of the time because I changed my routine to what fit me best. For the life of me I CANNOT sleep past 4 am so I have to adjust my bedtime accordingly. As I said, listen to the natural rhythm of your body as much as you can
  • Mood Swing Shindig: Ah, the pièce de résistance of symptom overlap! One minute you’re as giddy as a kid in a candy store, the next you’re contemplating whether it’s socially acceptable to cry into your cereal. Is it the fibro fog clouding your emotions, or is it the bipolar rollercoaster taking you on a wild ride through the valleys of despair and the peaks of mania? Who needs emotional stability when you can have a mood swing buffet? Being in a mixed episode for a prolonged period of time, I can’t hold on to the ride and bouncing between the highs and lows is leaving me bruised and bewildered
  • So, dear patient, welcome to the wonderful world where fibro and bipolar team up to keep you guessing and your doctors scratching their heads. Who needs clarity when you can have a medical mystery novel written by the masters of chaos themselves? Enjoy the ride!

Be kind to yourselves, and each other!

Uncategorized

A bit about sarcasm and the role of sardonic wit in our self care tool kit…

JoLeave a comment

I was planning on a different topic for today but guys, I HURT. I was very dumb. Went to the little one’s track meet and applied sunscreen in the car. We’d been there about two hours when I started getting UNCOMFORTABLY hot on my legs. About an hour after that, I tell hubby I think I am burning and we get to the shade but damage was done and I’m so red, and SWOLLEN! I even took Ibu (not cool with the CKD but sporadic use should be ok.) So I needed to research laughing, to remind myself of its existence and that it wont hurt like this forever lol.

So, in the wild ride of managing fibromyalgia and bipolar disorder, self-care isn’t just a luxury—it’s a necessity. However,as with most of the challenges we face as chronic illness patients, our solution isnt going to look like everyone’s solution. We have to take each self care tip and tweak it, bend it like we’re working clay, shape it into a mold that fits our goals and our realistic expectations This is where the unexpected hero, sarcasm, comes into play.

Research has shown that humor, including sarcasm which is a personal favorite of mine, can be a powerful coping mechanism for individuals navigating the complexities of chronic conditions like fibromyalgia and bipolar disorder. Studies indicate that humor can provide numerous psychological and physiological benefits, from reducing stress and anxiety to boosting mood and resilience. It’s not just about sharing a laugh; it’s about finding moments of levity amidst the pain and chaos, reclaiming a sense of control in a situation that often feels overwhelming. Laughing has a very unique way of replenishing my spoons. I’ll be just DONE and something so absurd or silly happens and I find myself getting the energy to handle my shit.

For many of us, sarcasm isn’t just a form of humor—it’s a language of survival. It’s the witty retort we offer when faced with yet another flare-up or mood swing. It’s the ironic commentary we make to cope with the absurdity of our circumstances. Like truly ‘if I don’t laugh, I’ll cry’ moments. Sarcasm becomes a tool for self-expression, a way to assert our identity and reclaim power in moments when it feels like our bodies and minds are betraying us. Making someone laugh is a balm for me, maybe I CAN’T laugh, when I make someone else laugh I can’t help but to join in no matter how much I hurt.

Personally, I’ve found that incorporating sarcasm into my self-care routine has been both liberating and empowering. When the pain flares up and the depressive fog descends, sarcasm becomes my armor, shielding me from the weight of my symptoms. My friends and family think I’m having a good day, when in reality I feel like I’m coming out of my skin. Its only acceptable to hide from the world and cry under your desk in the fetal position for a limited amount of time. It’s not about denying the reality of my conditions; it’s about refusing to let them define me entirely.

You know, one of the coolest things about sarcasm is how it can turn the most ordinary moments into chances to crack up and bond. Like, picture this: you’re swapping sarcastic memes with other spoonies, or you’re joking about the utter ridiculousness of dealing with medical red tape. It’s like this secret language we share, right? It brings us together, helps us feel less alone in the chaos of chronic illness. It’s like saying, “Hey, I get it, and I’m right there with you.

Of course, sarcasm isn’t a cure all, and there are times when a good laugh won’t magically erase the pain or stabilize my mood. But by integrating sarcasm into my self-care toolkit, I’ve learned to embrace the messy, imperfect journey of living with chronic illness. It’s about finding joy amidst the pain, reclaiming my power in a world that often feels beyond my control. So, here’s to the healing power of sarcasm—may we always find reasons to laugh, even when the odds are stacked against us.
Til next time gang, be kind to yourself and each other

Uncategorized

Ok, so we’ll try…

JoLeave a comment

Ok, its three and I want to write, lets see how this works out lol.
I said we were going to talk about Mania today, and in a way we will. Its also like talking about the way our brains lie.


I’m manic. I know that. Its a proven fact. But for anyone who thinks of mania as happy, I respectfully disagree.

So what is mania to ME (everyone’s body chemistry is different and mania might look different on you, I’m only speaking about my own experiences).

Mania is my brain on overload. This will make someones eye twitch but I have three screens up. One I’m typing this on, next to me youtube is open on a video I was dancing to a few minutes ago. Its paused so I can continue dancing to it (Too Sweet by Hozier if you are wondering) when I’m done or at 3:50 so I can get my steps in. My top monitor is discord, my kindle is directly next to my hand open to the book I’m reading. And beyond that the tv is on and its an episode I haven’t seen before. Drives hubby crazy when I do this but I can pay enough attention to get the gist of it, and I periodically stop and stare at it forgetting everything else I am doing. And I just did it again, I did my steps watched SVU then sat back down now I need to get back into story telling mode. George has the damn zoomies today I swear.

So now its 3:30. But I’m focused.

Ok so mania to me is, I can’t stop. My brain is already four sentences ahead of me. That’s not always terrible. Annoying, but not always terrible. I think it gives me golden retriever energy (think, comin’ at you with happy but persistent love. smothering you with it). Filling the silence with my own voice, and I HATE my own voice, so I try and drown it out with all kinds of STUFF, from writing here, to catching up on shows and books to chatting, I try and keep at least two things going on inside my brain.

Why? Why not let the thoughts come you may ask. Its a fair question. My answer is that nine out of ten times those thoughts are negative and destructive. They are intrusive and while I used to take in all those bad thoughts, sit with them, probe them, scratch at them, chew on them until I could decide why I felt the way I felt and where the thoughts were spawning from. I can’t do that any more. No one can hate me more than I hate my past self, but that’s where I have to stop. Hating myself for my past mistakes gets me nowhere. Until a Delorean pulls up in front of my home and tells me to hop in, I’m stuck living with what my past self did and how she was. That’s not sustainable. I can’t live in the past. So I fumble and forge ahead with all the grace of a lumbering elephant.


So the multiple screens and such to keep my brain busy so I don’t get any of the REAL BAD intrusive thoughts. These I’m sure many are familiar with. I’m a truly terrible person for what I said to this person that day. Irredeemable who cares its been 15 years, I am a bad person, I deserve to feel this alone, why would ANYONE put up with my quirks, who do I think I am? What purpose do I serve? Am I worth the air I breathe? I’m useless and I’m taking up space/attention/time of someone who has much better things to do.


Do I need to go on? Frankly even just saying that the thoughts are in there is like a little win. I know my heart is good. I know (intellectually) that I am loved. But you see how they attack like that? Like I’ll just be sitting here and forget something and the inner voice comes out ‘you’re so dumb bitch you were JUST thinking a thought, its not important just like you’re not’ then I hear that inner monologue and its like WHOA HARSH! PIPE YOUR LITTLE SELF DOWN RIGHT NOW MISSY! HERE SING NOVEMBER RAIN WHILE I DIG UP A MEMORY FROM 1998 THAT YOU CAN RELIVE AND ANALYZE THE SHIT OUT OF. That ought to keep you busy.

Even when I don’t THINK I’m having them I have them, if someone doesn’t answer a call or a text within like 2 hrs my brain starts analyzing every single interaction wondering what I said or did wrong.

I wish I had the drive and focus to do half the ideas that float by my brain when I’m like this, and I say float because that’s what happens, float, hover, kiss but never really fully fleshing out an idea in my head. Now I have some awesome ‘i’s, and some amazing ‘id’s on occasion but not the real full ‘IDEAS‘, I can’t hold it in my brain long enough to think about them or I bet they would be some doozies that would change the world.

Part of the time I even know its going to happen, I know I can’t change it, so I hold on for the ride. I can be talking to you, looking at you, full on engaged in the conversation I probably even initiated, and my brains like OOPS WE ARE FULL NO MORE ROOM AT THE INN, TRY ME AGAIN AFTER NAP TIME.

It happens so many times hubby says he can see it in my eyes lol now.

I hate that I feel this way, its like an itch just under my skin that I can’t get to. Thing is, I SEE EXACTLY why I am ‘too much’ for others, half the time I’m too much for myself, so I don’t blame people for not liking me. Still hurts but I see their point.

Anyway, that’s just my experience with mania and intrusive thoughts, I’d love to hear about yours, and how you shut up the voice constantly telling you that you suck. You are amazing and I’m glad you are not listening to them, you are cared for and loved and we need you here to anyone who needed to hear it. Til tomorrow guys, be kind to yourself and each other.

Uncategorized

Well staying past your welcome is just plain disrespectful…

JoLeave a comment

I think you can judge by the title what kind of day its been. You probably don’t want or need to hear how the palms of my hands are burning, but I’m going to tell you anyway, because I don’t have to fake smile with you. You don’t need me to be strong. You don’t need me to make responsible decisions. I LIKE that about you so thank you to the one person skimming this with their cereal while doing the crossword, I appreciate you. (Is it raisin bran? You seem like a raising bran person. I am a raisin bran person so I can spot my fellow raisin fans. But I’m also feeling corn flakes and fruit loops and so there’s room for error LOL). We’ll get into that too, the scrolling while doing a crossword and eating cereal. I feel you, I have to keep myself busy too. Its neurodivergence and we will discuss it in great detail once I can form words. I really should write these in the morning before the brain fog machine starts cranking, but nothing has happened by then generally. I’d write about the previous day’s activities but my day gets blurry when I look back. There’s a sweet spot I’m sure I just haven’t found it yet.

So I didn’t do much, one load of laundry, vacuum, dinner, exercise that’s the extent of it. Lots of inside my own head and reflections and spent a bit with monkey just watching tv. Now sitting here I’m getting this weird pain in my chest scaring myself but I’m sure its nothing, I’m a hypochondriac. I know this about me so its likely just a panic attack and I’m perpetuating it worrying about what and why I’m worried about it, I’m telling you its a math riddle I’m not even sure I could do the math and I’m the one who wrote the problem lol.

Anyway, I am proud of myself for making it though the monotony. If nothing else I’m always proud of myself even for just getting up as well as incredibly grateful I’m blessed to be here and breathe this air today.
I wanted to see if I could talk for a minute about the pain I’m experiencing. Maybe one of you has something similar, they all suck so in no particular order
MY HIP: Ok so there is a clear hierarchy on the pain in my body and hip decided to take point on this one. It feels as if there are electrical wires as my nerve endings and every time I hit it just right BLINDING pain. Its been this way for a while and will have me on the floor in a second if that hits. Nothing helps. Its been happening for over a year and my doc just throws up her hands and shrugs and says ‘that’s fibro?’ I get it but having been having extreme symptoms for over a year, maybe we try something else? She talked about shots and I’d consider it but I’ve read some not great things about it and I’m only putting myself through that if a higher percent of cases are a lot better.
Burning in palms and soles of feet: So this one is fairly new. I don’t know how else to explain it other than it feels like those, are they called thistles? Like soft thin thorns under my skin. It burns like poison. I don’t know what they are, but I can’t help but think this and the electrical shock pains seem like they could be the results of a pinched nerve

“Road Fog” by Ksenia Kudelkina/ CC0 1.0


THE FOG: The never ending roll after roll of thought stealing mist that is blanketing my area. I don’t think I can explain it better than that and I think if you get it my analogy would work well describing it. Simple words I have been saying all my life won’t come to mind when I need them. Under this header you can also find ‘walking into a room and having no idea why I went in there so I start doing something else, stay busy all day, and only remember when I’m laying down to sleep that I never got the thing I went in there to get. Often several times. Also, losing total track of your point minutes in to a conversation, like as you are speaking, the words evaporate like Thanos snapping his fingers. I heard a comedian’s description once and it was spot on. My brain hears some things it can’t properly process and decides to go on a little walk about. Yup, my brain doesn’t understand what its hearing so it gives up, only a short time later it catches up and wants to say something but the convo is already on something totally different.
The exhaustion: Like enough said. But its not just feeling tired all the time, its feeling tired of this or that. A lackadaisical why bother kind of vibe. I’m just so over everything.
Wide spread tender points: they all suck. Also super sensitive to tastes, smells, noise.

That’s just the fibro. We’ll talk more about mania tomorrow. Maybe. We’ll see if it pisses me off

How about you guys? Anyone have anything to add to the list? It sucks and I am proud of you for getting up and battling it. I’m going to crash, take care of yourself and each other.

Uncategorized

Can I just get it popped back to normal like Barbie?

JoLeave a comment

Guys, I’m sorry, yesterday was CRAZY. It was my birthday which I told you about, but we also had our kid’s track meet, which if you’ve never been (because I hadn’t been. Not sure if you could tell this about me but one might say I have the athleticism and grace of a newborn giraffe on roller skates, so I did not participate in sports in high school) takes about 4 years hours and involves a lot of time waiting for it to be your kid’s event while kids stomp up and down the bleachers and there’s at least 4 other kids screaming then a small handful with their heads together giggling while there’s conversations simultaneously in every direction and your brain seems to latch on to a single word from each one of them collectively making NO fucking sense, bu… GEORGE!

We have to have some ground rules Sir, this is not sustainable. I’m here to tell a story, to make someone laugh even for a minute. You can’t keep interrupting me, its rude and disrespectful of these poor folks time.

Anyway, so before we went I wanted to zone for a bit and I figured I’d do the lawn, nice and sunny and before the heat of the day. All week I knew where I was going to go for birthday dinner. I was going to say the name but if the wrong person reads it I could be liable, I’ll have to research that. We’ll just say it was a BBQ place that I had been looking forward to going to for two weeks, it wasn’t as good as I remembered. Well, so it was already a low spoon day, I thought mowing might ‘recharge’ me since it does help me mentally. It did not. So I was almost out before we got there, but you know the drill, you soldier on. Then I had to walk. I had to walk far. SO far guys. Then METAL bleachers! I mean the nope’s were piling up.

I’m on a new med because of the eye (I don’t know if I showed you but I have something like a stye on my eye and we are trying the meds for three months to see if it responds.) I was told it might make me a little more sensitive to the sun. I was ill prepared for that situation too as it turns out, but at least that was easily rectified as daughter had sunscreen. I applied it too late of course so I felt every inch of me tighten. NOT A GOOD PLAN AHEAD-ER. I did wear a hat so I was kind of prepared, however, I neglected to consider my neck would be exposed. So I didn’t apply sunscreen. So yeah, today was maybe a 11 on the pain scale today. I’m finally coming out of it, I can tell when I’m on the upswing, no more down, in the words of T-Pain ‘we goin up!’
I’m concerned about my hip. Its pretty well constant pain now, and I get these blinding white hot flashes that will knock me down, so I’ve been debating getting shots, I know people who have had positive effects and those that had negative effects. Also this convo, it was hubby and I talking about it for the fiftieth time

I don’t know why it hurts so bad

Could it have anything to do with how you sit?

Why? I just sit normal

DO YOU though?

(that was all pics from today but all the way I normally sit. I almost always sit with one of my feet under me and yeah he’s not wrong lol)
So today was a recovery day all in all it was good, just a bit too much pain for my liking. I did discover something dangerous yesterday. Braums has dreamsicle shakes! Well its just orange sherbet and vanilla ice cream they don’t call it dreamsicle, its just half vanilla and half sherbet shake.
After I was able to sit down tonight I just found myself staring blindly somewhere in the general vicinity of the tv, nothing really notable but gang, listen to your body. Follow its cues. It will leave you so much happier at the end of the day. No one can know how you feel but you. I read somewhere theres a good percentage of people who go through life without any headaches. Thats UNFATHOMABLE to me. I bet something that was a 2 or 3 on a spoonie’s pain scale would be a 10 to them, they’d probably think they were dying. We are all different, perceive things different, experience things different. Til next time gang, take care of yourself, and each other.

Uncategorized

…. survey says… FLARE!

JoLeave a comment

Hey gang. I don’t have much to say today because today is a heavy pain day but I think tomorrow will be better. Well it will be because I said so and its my birthday and I intend to make it my bitch. Pain be damned I have shit to do! I even got whipped cream because I was going to make myself some birthday cupcakes, but I forgot to get the cupcakes. You know what’s really good? Apple cinnamon whipped cream, you make it with, DAMNIT GEORGE

Anyway, with my flare kicking my ass I haven’t been mustering up the energy to do anything other than put my head down and survive the last few days. I had plans to mow the yard but had to be alone this afternoon and we try and make sure he’s here if I’m outside. I might try for it tomorrow morning, which I know is dumb to do on my birthday but it gives me a deep sense of peace.
My leg/hip is the main source of problems. Its the side that took the brunt of the impact from the car accident, but its more front of my thigh. Its so weird, there’s got to be exposed nerves in there. As anyone with fibro will tell you, we’re limited in options of what even has a chance of working, but I’ve purposely limited my choices further. I’ve recently found that any ache or new pain I have brought to my doctors attention has gone very similar to this:
So, what brings you here today

Well I have a new ache, its (there’s a number but we’ll use my leg for this example), its usually at maybe a 2 or 3, like enough of an ache in the background to notice, but not to do anything about but recently it hasn’t gone below a 5 and will frequently jump up to a white hot eleven with no notice and its so severe I will fall down because of it, like just an absolute blinding pain, almost like somethings brushing against a nerve’

I swear she didn’t even look up, just nodded and put info into a chart.

Yes, I’m sorry, that’s part of fibro from what I understand, have you tried ice or this med or that or a combo…

Look ma’am I’ve had fibro for 16 years, I KNOW fibro pain, this is NEW.
Its fine. She’s probably right. I just feel like I’m not being heard and it adds to the pain and frustration until I’m walking around like a boiling tea kettle. But we’re managing. We got up. We ate something. We made a number of new products and we researched how to make 10 more.
Progress, any meaningful progress anyway, doesn’t happen over night, but it happens. I know this. I have seen it. I’ve done it. Just keep pushing forward my friends, its all we can do. Every once and a while reach your hand out, whether in need to or offer assistance, people care. You matter.
Tomorrow will be a good day. Til next time, stay kind to yourselves and each other.

Uncategorized

The lies our brains tell…

Jo2 Comments

Ok guys I’m just getting comfortable in front of the camera again, but I wanted to do a video today, and I wasnt doing it without a filter and the tech is new to me at this point so I gotta figure out the logistics and such. Its very choppy because of the medium I was trying to talk slower but you can tell its only in like 10 second clips. Partner suggested a different way and I’ll try that next time. The point of my video is if your brain always makes you feel like people hate you, you are not alone. We’ll support each other and learn how to make our brain shut up together