Living with chronic conditions like fibromyalgia, ADHD, and bipolar disorder means navigating a daily landscape filled with unpredictability and discomfort. Some days, it’s the bone-deep ache that slows me down; other days, it’s the whirlwind of mental fog, impulsivity, or emotional crashes that make the hours feel heavier than they should.
Over time, I’ve discovered something powerful: crafting isn’t just something I enjoy—it’s something I need. Whether I’m swirling pigment into resin or layering textures in a tray mold, I’m not just passing time. I’m reclaiming it.
🎨 Crafting as a Therapeutic Distraction
When my pain flares or my brain decides it wants to spiral, I’ve learned to grab a tool—sometimes a glue gun, sometimes my 3D printer software—and create instead of collapse. Focusing on a tactile task redirects my mind and offers relief, even if temporary. And sometimes that temporary is exactly enough to get me through the day.
Today I mowed. Should I have? Likely not, I was weed eatering (I have no idea what to call it, using the weed eater sounds weird, like use it for what lol, I was using in for its intended purpose LOL) I was around the base of our biggest ‘problem’ tree, I tripped over a root and went tumbling (I was on an incline) but don’t worry, I didnt hurt my hip I landed face first LOL. I got up but knew I was on limited time before the pain made me get down and stay down for the day, so I immediately went in an showered so I could go make art which I did all afternoon. It really didnt feel like I had any pain then after I did some designs I stood up to get something and THERE IT IS! My pain let itself be known. In fact it started screaming at me, my entire body aches.
This isn’t just anecdotal. A study from the University of Colorado found that mental distractions actually inhibit pain at the earliest stages of processing. Basically, when you’re busy crafting or designing something fun or beautiful, your brain says “brb” to the pain (source).
🧠 The Neuroscience of Distracting Pain
Pain is weird. It’s not just in your body—it’s in your brain too. And your brain can be tricked (in the nicest way). Activities that take up cognitive load (like learning a new resin technique or tweaking text in Tinkercad) can literally reduce your brain’s ability to process pain.
There’s even evidence that creative distraction helps people who tend to catastrophize pain—that is, folks whose brains go “this is the worst pain ever and I will never survive this” before breakfast. (Relatable? Same.) (source)
🧺 Turning Pain Into Purpose
I don’t just make things to distract myself—I make things with meaning. Every “Bad Day Basket,” every resin trinket tray, every cheeky 3D-printed phrase like “feel your feelings” or “meds, magic & mindset”—they all come from lived experience.
Helping people has always been a passion of mine, I’ve made up baskets and boxes from coupon shopping, theres nothing like the feeling of doing something of consequence for someone else. Theres an episode of Friends where Phoebe wants to do something selfless, and ever time she does, Joey finds a way it benefited her, concluding that since when you do good for others, you feel happy and proud that you were able to do that, therefore nothing is entirely selfish. Like if you’ve ever vacuumed a new rug, you know the lined pattern you get after for a job well done? Its like that only times a whole bunch more.
These aren’t just products. They’re part of a bigger story—mine, and maybe yours too.
🌟 Creativity as Self-Care (Not Performance)
It’s not about perfection. This isn’t art school. This is about peace. About having something in your hands that makes you feel in control again. About setting your mind gently in another direction for a little while.
Let yourself play. Let yourself suck at it. Let yourself create something beautiful—or beautifully messy.
💬 Final Thoughts
Chronic illness will take what it can. Crafting is how I take a little bit back. It’s okay if it’s imperfect. It’s okay if it’s just for you. The act of creating is the win.
If you’re on your own journey through pain or mental health struggles, I hope you’ll try creating something too. And if you don’t know where to start… well, I’ve got some trays and kits with your name on them. Til next time gang, take care of yourselves, and each other!
Gather ’round fellow sufferers, for a tale of bodily betrayal that’ll make you laugh, cry, or maybe both – because let’s face it, sometimes that’s all we can do when our parts start throwing in the towel! Welcome to your 40s, folks – that magical decade when your body parts start sending out retirement notices faster than you can say “midlife crisis.” It’s like they all got together for a secret meeting (probably while I was napping – thanks, fibro!) and decided, “Hey, we’ve been busting our butts for decades. Time to clock out and let the young’uns take over.” Now, I’m no stranger to the ol’ body part eviction notice. My colorful past has led to more parts being removed than I care to count. I’m basically a walking “Lost and Found” box at this point. But just when I thought I was done playing Operation with my own body, my hip decides to join the exodus.
There I am, minding my own business (okay, probably complaining about something else hurting, cuz fibro), when BAM! My hip sends in its resignation letter. It’s done. Finito. Sayonara. My hip’s basically like, “Listen, lady, I’ve put in my hours. I’ve carried your sorry ass around for 40+ years. It’s time for me to hang up my hat and enjoy some R&R. Maybe take up golfing or start a hip-hop career. Get it? Hip-hop?”
This trusty joint of mine has been putting in some serious overtime, and let me tell you, it’s been doing it without so much as a coffee break or a “Hip of the Month” plaque. For years, it’s been the unsung hero of my body’s workforce, carrying me through my fibro flare-ups, cat-chasing adventures, and those days when getting out of bed felt like scaling Mount Everest.But somewhere between the thousandth grocery bag lift and the millionth “I swear I’m not limping, I’m just walking with style” stride, my hip started getting a bit… well, hip-ster. It began demanding things like “rest” and “proper alignment” – the nerve! It’s like it suddenly remembered it had rights or something
When it started troubling me I faced the obstacles that are sadly all too familiar to my fellow warriors, I take this new concern to the doctor, it was initially just brushed off with ‘yes fibro is chronic pain’. Then two years after that, with me consistently saying it hurt DIFFERENT than the fibro, she ordered an x-ray since it was such a weird but steadily getting worse pain and the scan showed moderate osteoarthritis. Not curable and one of those ‘just gonna hurt’ pains. Fast forward three years, finaly got another x-ray that reclassified my OA status is severe and severe enough to put me on the hip replacement list. Color me terrified.
Not every pain we have is fibro related. I understand how easy it can be to dismiss our symptoms as ‘just fibro’ or ‘just stress.’ But we know our bodies, and sometimes what feels like one condition is actually something more. Don’t let anyone invalidate your experience. If you feel something isn’t right, advocate for yourself and push for the care you deserve. Our voices matter, and we deserve to be heard when it comes to our health.
So here I am, facing down a hip replacement way too young thanks to fibro, and thanks to the car hitting me when I was walking. Because apparently, I’m an overachiever even when it comes to falling apart. But hey, look on the bright side – at least I’ll have a shiny new bionic part to add to my collection. Maybe I’ll even get a punch card: “10 surgeries and the next one’s free!” I’m probably up to that by now LOL.
The Moment of Truth: Cysts and No Hope for Fixing It
So, what happened next? Oh, just a little something called “The Moment of Truth: Cysts and No Hope for Fixing It
So, what happened next? Oh, just a little something called “subchondral cysts otherwise known as bone cysts.” Because apparently, my body wasn’t just aging gracefully—it decided to throw in some uninvited guests to make things extra fun. The cysts basically sealed the deal. My hip wasn’t just aging out; it was actively failing on me. After an x-ray, my ortho looked at me and said, “Oh honey, this is severe. There’s no saving this one.”
That was it. No shots, (and I had been putting off getting shots for the pain actually, was finally strong enough in my belief that I could do it and I had no more options since I won’t take narcotics) no pills, no more easy fixes. It was time for major surgery—a hip replacement. And honestly? It felt like a bit of a gut punch, but also a relief. I mean, I’d been working with a hip that was basically clocking out without telling me, so now it was time to send it into official retirement.”
Retirement Offer: The Hip Replacement Option
This is where things got real. I thought I could push through, maybe try some shots or other treatments, but nope, that wasn’t going to be enough. The hip sent a strong message that no amount of cortisone was going to keep it in the game any longer. And after consulting with my ortho, we discovered that my old hip wasn’t just tired—it was severe. So, we started the paperwork. A hip replacement is on the horizon.
I look forward to the end of March, that will be near the official day that my hip clocks out for good, and a shiny new joint will step in to take its place. So, What’s Next?
Aging might be inevitable, but a hip replacement can be a total game-changer. And while I’m not thrilled about the process (did I mention I almost passed out twice during the initial consult?), I’m ready to get that shiny new hip and hopefully say goodbye to some of this pain.
Here’s the thing: The body’s not like it used to be in your 20s and 30s when you could run full speed and wake up feeling like you just slept in a cloud. Nope, my body is now sending in its retirement applications early, and I’m here for it—with a little humor and a lot of prep work, of course.
In the upcoming posts, I’ll share more details about what the process actually looks like: from the pre-op checkups to the (probably highly entertaining) recovery phase. So, if you’re someone who’s looking down the barrel of your own hip replacement, or you just want to see how this unfolds (because who doesn’t love a good recovery journey?), stick around! Maybe my hip will send me a post card lol. Til next time gang, take care of yourselves. And each other.
1. Misconception: Fibromyalgia is just “in your head” or not real. Truth: Fibromyalgia is a real, chronic medical condition that affects the central nervous system. It’s characterized by widespread pain, fatigue, and other symptoms that are definitely not imagined. It’s scientifically recognized and impacts both physical and emotional well-being. Science backs us up on this one, folks.
I can sometimes understand why people might not get it—if I’m having a good day and I’m active, I probably look like your average Midwestern mom. I mean, maybe I should just get an “F” tatted on my forehead? I’ve thought about it. The number of doctors who’ve been dismissive of my very real condition is almost as high as the number of people who are shocked when they hear about my bipolar diagnosis. Clearly, they haven’t seen the rapid mood swings or heard me say, “But you’re sad?” to which I’ll reply, “Yes, amazingly, I can be both sad and manic at the same time, and trust me, it’s a million times worse.”
But I digress. Let’s keep up here—it’s 2025, and fibromyalgia has been a diagnosable illness since 1976. Before that, it was known as fibrositis in 1904, and even earlier, it was referred to as rheumatism. I mention this because, although no one knows exactly what causes it, I’ve been diving into my genealogy—yes, I’m a bit of a nerd—and checking birth and death records to compare what I know versus what I think I know. In the process, I’ve noticed that at least six of my direct ancestors had some form of fibro or rheumatism.
Do I think fibromyalgia will kill me? No—honestly, I have more pressing health concerns to worry about—but it’s been around for a long time. If you come across a medical professional who doesn’t think fibro is real, get a second opinion. And just to clarify: I’m talking about someone who doesn’t believe fibro even exists—not someone who doubts it’s what you’re suffering from. I’ll say it again: a second opinion never hurts… though, in my case, I had my doctor of 7 years drop me for getting one. So stay informed, don’t get discouraged, and keep pushing until you get the answers you deserve.
2. Misconception: Fibromyalgia is the same for everyone.
Truth : Fibromyalgia is like a box of chocolates, you never know what you’re gonna get. Sure, we’ve all got the greatest hits – pain that feels like we’ve gone ten rounds with a heavyweight champ and fatigue that makes sloths look energetic. But beyond that? It’s a grab bag of fun surprises. Some of us are walking zombies thanks to sleep issues, while others are living in a fog so thick you’d think we’re extras in a horror movie. And don’t even get me started on the triggers. What sets off my fibro might not even tickle yours. This is why docs often treat fibro like the ‘rule it out’ illness. They run every test under the sun, and when everything comes back squeaky clean, they throw up their hands and say, “Must be fibro!” I wonder how many times that phrase was said by a doctor to a person who died from something that should have been caught. Wouldn’t it be peachy if we could all agree on what fibro looks like? Maybe then we’d have a magic pill or a cure. Hell, I’d settle for a flashing neon sign that says, “Fibro flare incoming!” But nope, that’s not how this beast rolls.
3. Misconception: People with fibromyalgia are just “lazy.”
Truth: People with fibromyalgia often experience extreme fatigue that is not relieved by rest. This can make daily activities feel overwhelming and exhausting, but it’s not a matter of laziness—it’s a physical condition that affects the body’s ability to generate energy and recover. Picture this: you’ve just “slept” for 10 hours, but you feel like you’ve been awake for days, You drag yourself out of bed, feeling like you’re moving through molasses, and even the simple act of making a cup of coffee feels like you’re scaling Mount Everest. That’s fibro fatigue, folks.
This isn’t about being lazy or needing an extra cup of coffee. It’s your body throwing a full-on rebellion, refusing to generate the energy you need to function like a normal person. And let me tell you, it’s beyond frustrating.
The kicker? This fatigue doesn’t play fair. It doesn’t care if you’ve rested, slept for 12 hours, or spent the day binge-watching your favorite show. It’s always lurking, ready to sucker-punch you when you least expect it. And no matter how mad I get at myself, once I’m in a funk its necessities only and they tend to relate to immediate family, so the things I don’t get done pile up until they become daunting to the point that I don’t know where to start so I just DON’T start. Executive dysfunction at its best folks.
So next time you see someone with fibro canceling plans or looking like they’ve been hit by a truck, remember: we’re not being flaky or dramatic. We’re just trying to navigate life with a body that’s forgotten how to recharge its batteries. It’s not laziness—it’s our reality, and we’re doing our best to push through it every single day.
4. Misconception: Fibromyalgia only affects older people. Fibromyalgia is also not limited to adulthood—children and adolescents can be diagnosed with it, though this is relatively rare. According to the American College of Rheumatology, fibromyalgia in children and teens often presents differently than it does in adults, with symptoms like widespread pain, fatigue, headaches, and difficulty concentrating (often referred to as “fibro fog”). The challenges with diagnosing fibro in younger individuals are compounded by the fact that many of these symptoms overlap with those of other conditions, making it harder to pinpoint fibromyalgia as the cause.
In younger patients, symptoms may be mistaken for growing pains or other childhood illnesses, which can delay a correct diagnosis. The National Fibromyalgia Association states that fibromyalgia in children may be underdiagnosed, partly because doctors may attribute symptoms like tiredness or pain to more common, non-chronic conditions. Additionally, children may struggle to articulate how they’re feeling, which can make diagnosis even more difficult.
Fibromyalgia can occur at any stage of life, and its symptoms vary widely. While some people may have mild discomfort, others experience debilitating pain and fatigue that severely impacts their daily lives. As the condition often fluctuates in severity, it can be hard to predict its long-term course.
It’s important to note that the cause of fibromyalgia is still not fully understood, though genetics, infections, physical trauma, and emotional stress are thought to contribute to its development.
5. Misconception: There’s no treatment for fibromyalgia.
You’ve probably heard there’s no treatment for this beast, right? Well, hold onto your hats, because that’s about as true as saying chocolate isn’t a food group. Sure, we don’t have a magic wand to make fibro disappear (believe me, I’ve looked). But we’ve got a whole arsenal of tricks to keep this monster at bay. It’s like playing whack-a-mole with your symptoms, but hey, at least we’re not sitting ducks! First up, we’ve got meds. From your garden variety pain killers to fancy-pants antidepressants and anti-seizure meds, there’s a buffet of options. These bad boys can help tame the pain and maybe even let you catch some Z’s without feeling like you’ve been hit by a truck. Then there’s physical therapy and exercise. I know, I know, the thought of moving when everything hurts is about as appealing as a root canal. But trust me, a little moderate exercise can work wonders. It’s like giving your body a tune-up.
And let’s not forget about the mind game. Cognitive-behavioral therapy isn’t just for when you’re feeling blue. It’s like a personal trainer for your brain, helping you outsmart the pain and stress. Now, for the lifestyle changes. Getting enough rest, eating right, and practicing good sleep hygiene might sound like advice your grandma would give, but don’t knock it ’til you’ve tried it. It’s amazing what a difference these can make. For those feeling a bit adventurous, there’s always acupuncture and massage. It’s like a spa day, but with actual health benefits. Who knew getting poked with needles could feel so good? The key here, my fellow fibro warriors, is to mix and match. It’s like creating your own personal fibro-fighting cocktail. What works for me might not work for you, and that’s okay. We’re all unique snowflakes in this blizzard of pain.So don’t let anyone tell you there’s no hope. We might not have a cure (yet), but we’ve got options. And in this fibro fight, options are our secret weapon. Now, go forth and conquer my friends, Until next time take care of yourselves, and each other.
Much like Loki of Asgard (who was burdened with glorious purpose) that prankster fibromyalgia (who, for all we know is just doing this shit for funsies) just loves messing with us, doesn’t it? Its idea of a good time is replacing all the words in our brain with radio static for a rousing game of “What Did I Come Into This Room For?” Talk about a comedic fibro fog party trick!
And let’s not forget fibromyalgia’s classic prank of swapping out our skin for sandpaper while we sleep. Waking up feeling like we got a full-body exfoliation treatment from Edward Scissorhands? Chef’s kiss to that hilarious bit of tomfoolery!
Then there’s the ol’ random full-body ache for no damn reason gag. You’re just going about your day when BAM – it’s like you got hit by a truck carrying a cargo of pain and fatigue. Fibromyalgia’s version of the old “kick me” sign prank, but way less funny.
Sometimes it gets super creative by hiding all our energy reserves like George stashing nuts. Suddenly basic tasks like showering feel as exhausting as running a marathon. Thanks for that delightful prank, fibro – really keeps us on our toes!
But fibromyalgia’s pièce de résistance has to be the sensory overload prank. One minute you’re fine, the next it’s like all your senses got turned up to 11. Lights are blinding, sounds are deafening, and tags on your clothes may as well be made of cacti. Now THAT’S a practical joke that really sticks the landing!
Fibromyalgia really gets a kick out of the old “hide and seek” game with our energy levels. One minute we’ve got enough gas in the tank to run errands, the next it’s disappeared without a trace! Good luck trying to locate those missing spoons to accomplish basic tasks
And let’s not forget fibro’s classic bait-and-switch prank of luring us in with a decent night’s sleep, only to cruelly snatch it away with a morning of feeling more exhausted than if we pulled an all-nighter. Tricking us into thinking we’ve finally beaten insomnia is such a knee-slapper for this prankster condition
Prankster Fibromyalgia is out here giving Loki a run for his money. But we know all this. And knowing is power (knowing is half the battle? I don’t know, insert your own 80s slogan lol) Now if we could just fix these things, well, maybe we DID fix all the things and we forgot where we put the answers. That sounds like something we’d do. You guys go look for that, I gotta go see where George ran off to with that, I might need it. Take care of yourselves, and each other!
Fibromyalgia, the condition that makes “chronic pain” seem like an understatement, often comes with a side order of psychological hurdles, courtesy of our good friend, solitude. Picture this: you’re in a constant battle with your own body, and just when you think you’ve reached an understanding, your social life decides to pack its bags and take a vacation to “nowhere in sight.”
Isolation, the VIP section of the fibromyalgia club, isn’t exactly a coveted spot. Between canceling plans last minute because your body decided to throw a tantrum and having to explain for the umpteenth time why you can’t just “shake it off,” it’s no wonder you’re left feeling like the lone wolf in a pack of social butterflies.
Loneliness, the emotional equivalent of trying to find Waldo in a sea of blank stares, becomes your not-so-trusty sidekick on this rollercoaster ride. Who needs friends when you have your trusty heating pad and a Netflix subscription, right? But let’s be real, even the most dedicated binge-watcher can’t fill the void of genuine human connection.
Feeling misunderstood? Welcome to the fibromyalgia Olympics, where everyone’s a gold medalist in the sport of not getting it. Because nothing says “fun” like trying to explain why you’re tired all the time to someone who thinks a good night’s sleep can cure anything from a broken heart to a broken leg.
In conclusion, the psychological effects of solitude on individuals with fibromyalgia are about as enjoyable as a root canal without anesthesia. But fear not, fellow fibro warriors, for in the midst of the chaos and the pain, there’s humor to be found. So, here’s to finding solace in laughter, camaraderie in shared experiences, and the occasional eye roll at well-meaning but clueless bystanders. After all, if you can’t laugh in the face of adversity, what’s the point? Take care of yourself, and each other.
Ah, relationships and fibromyalgia, the ultimate test of love and patience. Because what better way to spice up your romantic life than with a chronic pain condition that’s about as predictable as the weather forecast in the Midwest in May?
Picture this: you’re all snuggled up on the couch, ready for a cozy night in with your significant other. But instead of Netflix and chill, it’s more like a game of “Find the Least Painful Position” as you try to avoid triggering a fibro flare-up every time they accidentally bump into you. Ah, romance.
Also, the timeless struggle of elucidating fibromyalgia to your significant other without coming off like a wannabe actor on Grey’s Anatomy. “Oh darling, I’m not merely exhausted—I’m ‘fibro-fatigued.’ It’s fatigue with a twist, a dash of theatrics, and a sprinkle of existential dread for flavor. Just your average day in the life of a medical drama, right?”” I’ve always wanted to be on Greys. Or, honestly I’m old school and ER was my jam. STAT! lol
Oh, and communication? That’s a whole other ballgame. Because nothing says “I love you” like trying to have a serious conversation about your pain levels while your partner’s eyes glaze over like they’re watching paint dry. Ah, the sweet sound of empathy. I love watching the light in my partners eyes dim when I talk tender points. I can see exactly when he tunes out and I’m always tempted to throw in extra random shit to see if he’s paying attention lol
But hey, if your relationship can survive the endless doctor’s appointments, the mood swings from pain medication, and the occasional meltdown in the frozen foods aisle because they’re out of your favorite ice cream (or just because its Tuesday), then you know you’ve found a keeper. So here’s to love, laughter, and navigating the minefield of fibromyalgia together. Til next time gang, take care of yourself, and each other.
I have a lot of other things I want to talk about but Fibromyalgia is so weird and varied from one person to the next and since the diagnosis tends to come after ruling out all the other causes for the symptoms being experienced and we’ve been talking about the symptoms, lets take a look at some common practices and life style changes recommended to us to help reduce the severity of the symptoms we are experiencing.
Not everyone experiences everything all at once or at all ever, fibro patients are a lot like fibro itself, all over the place. So I picked the solutions I have heard in MY past the most, but we are all different and some of this worked until it didnt, some never worked, and maybe some won’t work on ME because of my comorbidities but might make you feel tiptop. I can only write about the ones I’m familiar with and these are the holistic treatment of the symptoms, not the actual illness. You might need meds, or treatment other than what I’m going to outline. This isnt a rule book, its not a guidebook, its not even a book, I’d say at most its a ‘bo-‘ lol but if any of these are practical, talk to your doc about them, talk to family and friends, talk to other chronic pain sufferers, do your due diligence I guess I am saying.
Now, for those seeking an adventure beyond pill popping, behold the wonders of holistic treatments! Brace yourselves for a journey through the mystical realms of self-care:
Behold the ancient art of “EXERCISE“! Marvel as you engage in low-impact activities like walking, swimming, or biking, all while pretending to enjoy it. Stretching and yoga are also on the menu, promising flexibility and less stiffness, if you can bend that far without groaning. This can be gentle movements on the bad days that you already feel like you’ve gone 10 rounds with the undefeated world champ, or more intense heart rate elevating exercises for the days you don’t feel sore and achey and just kind of miss it lol.
Enter the realm of “healthy diet“! Feast upon the bounty of fruits, vegetables, and whole grains, and bid adieu to caffeine and trigger foods… or risk awakening the mighty fibromyalgia beast from its slumber. Now I know that can seem daunting, especially to those with current or former eating disorders, this is one you need to work super close with a doctor or nutritionist on. If nothing else, try to slowly ease the foods that are known triggers from the equation. Give it a month or two at least after any changes and reassess. And don’t beat yourself up over a small screw up, no reason to trash it all or start over, you stumbled, just right yourself and continue on, its not an all or its not worth it scenario, each change is helpful and will have cumulative effects.
Prepare for battle against the nefarious stress! Arm yourself with mindfulness meditation, deep breathing, and other relaxation techniques, and perhaps you’ll emerge victorious against the stress monsters lurking within.
Embark on the quest for quality sleep! Equip yourself with the finest sleep hygiene practices, banish caffeine and screens from your bedside, and venture forth into the land of dreams, where fatigue dares not tread.
Pacing Activities: Learning to balance activity and rest is essential for managing fibromyalgia symptoms. Pacing oneself and avoiding overexertion can help prevent flare-ups and conserve energy for activities that matter most.
Heat and Cold Therapy: Applying heat packs or taking warm baths can help alleviate muscle pain and stiffness, while cold packs can help reduce inflammation and numb painful areas.
Massage Therapy: Massage therapy can help reduce muscle tension, improve circulation, and promote relaxation, which may provide relief from fibromyalgia symptoms.
Supportive Therapies: Engaging in supportive therapies such as cognitive behavioral therapy (CBT) or counseling can help individuals cope with the emotional challenges of living with fibromyalgia and develop effective strategies for managing symptoms.
It’s important for us to work closely with healthcare providers to develop a personalized treatment plan that addresses our specific needs and preferences. Integrating holistic approaches with conventional medical treatments can often lead to better symptom management and overall quality of life.
As you can see, even if you are resistant to taking meds, there are options available, we can’t make it go away but we can beat it into submission with a few of these tips in our arsenal. Are there any tricks you’ve found to be helpful? We love it if you’d share with the class lol Til next time guys, take care of yourselves, and each other!
Fibro folk, tell me I’m not alone, you’re out, having some fun with friends, one of them out of the handful that are around, knows about your Fibro and inquires about your health. You thank them for their genuine concern, pleased to know someone is listening, when another one says ‘Oh is that the sleeping one? I got some (insert name of sleep supplement here) from facebook/tiktok/my sister’s brother in law’s father’s uncle said it works for all those and it knocks me right out’ while you are looking down so that fire doesnt shoot out of your eye holes you remember you’re too tired to argue with this person that you hardly know about what the different kinds of tireds there are. Let her be her dumb ass self and hope that she never has any type of chronic illness, because you wouldnt wish any of it on your worst enemy let alone this obnoxiously oblivious woman.
Chronic Fatigue Syndrome (CFS) and Fibromyalgia are both chronic conditions characterized by symptoms that can significantly impact a person’s quality of life, but they differ in their primary symptoms and diagnostic criteria. “Just being tired,” on the other hand, typically refers to a temporary state of fatigue that can be alleviated by rest and does not meet the criteria for either CFS or Fibromyalgia.
CFS, also known as Myalgic Encephalomyelitis (ME), is primarily characterized by profound fatigue that is not alleviated by rest and persists for at least six months. This fatigue is often accompanied by other symptoms such as cognitive difficulties (often referred to as “brain fog”), muscle and joint pain, headaches, sore throat, and tender lymph nodes. The exact cause of CFS is not fully understood, but it is believed to involve a combination of factors including viral infections, immune dysfunction, and psychological stressors.
Fibromyalgia, on the other hand, is primarily characterized by widespread musculoskeletal pain and tenderness, often accompanied by fatigue, sleep disturbances, cognitive difficulties, and mood disorders such as depression and anxiety. The pain associated with fibromyalgia typically affects specific tender points in the body, and the condition is thought to involve abnormalities in how the brain and spinal cord process pain signals, as well as factors such as genetics, infections, and trauma.
“Just being tired,” or transient fatigue, is a common experience that everyone encounters at some point in their lives due to factors such as inadequate sleep, physical exertion, stress, or illness. Unlike CFS and Fibromyalgia, transient fatigue typically resolves with rest and does not persist for an extended period of time. While it may share some symptoms with CFS and Fibromyalgia, such as fatigue, it lacks the severity, duration, and accompanying symptoms necessary for a diagnosis of either condition.
Til tomorrow folks, be kind to yourself and one another.
Hi gang! I have some stuff to say about other topics but since its Fibromyalgia Awareness Month lets try and keep the Fibro convo going. Fibro’s a tough nut to crack when it comes to diagnosis because there’s no one-size-fits-all test that gives you a clear-cut answer. I totally get the frustration there. It’s crucial to team up with a doc who really knows their fibro stuff, one who listens to what you’re going through and doesn’t just slap everything under the fibro label. Sure, fatigue might be tied to fibro, but it could also signal something else lurking in the shadows. What if it’s a whole other issue that can be managed? It’s worth digging into. If your doc brushes off any of your worries, it’s time to find someone who takes you seriously. Seriously, advocate for yourself! Start by getting clued up on what you’re dealing with, arm yourself with info on what treatments are out there, what to watch out for, what might be red flags for other conditions. Sure, docs should be up to speed on all this stuff, but they’ve got a million and one things on their plate. You knowing your stuff gives you a leg up, at least you can point them in the right direction. Bring along logs of your symptoms, stuff you’ve tried, and hey, if you’ve found some golden nuggets of wisdom online, make sure they’re from a legit source. Doctors ain’t gonna take your brother’s buddy’s Facebook rant as gospel, and it just makes it tougher for the rest of us.
Ah, fibromyalgia, the mystical unicorn of medical conundrums, where symptoms are as clear as mud and diagnosing it feels like playing a round of medical bingo. Let’s paint the picture, you stroll into your doctor’s office armed with a laundry list of symptoms that could make even the most seasoned hypochondriac turn green with envy. But instead of the understanding you anticipated, you’re greeted with the classic eye-roll and the timeless response: ‘It’s probably just Fibro.’ Making you feel like its normal to hurt this way and you should just buck up and take it. You must be weak if you can’t handle it. Because, of course, who needs medical expertise when you’ve got stress to conveniently blame for every twinge and throb, am I right?
And when your doc finally has enough of your complaints they do the next predictable thing, referral so you are no longer their problem. The notorious medical dance – you know, where you hop from one specialist to another like a pinball in a machine, each one looking more perplexed than the last. “It’s just in your head,” they proclaim, as if that magically diminishes your pain, making it more… ethereal? Because obviously, feeling like you’ve been steamrolled by a freight train is just a whimsical creation of your imagination, not a serious condition worthy of genuine concern.
But fear not, dear patient, for there’s always the ever-popular misdiagnosis game to keep things interesting. Is it chronic fatigue syndrome? Is it rheumatoid arthritis? Is it just your body’s way of telling you that it’s time to invest in a better mattress? Who knows! It’s like playing medical roulette, except instead of winning a jackpot, you get a lifetime supply of confusion and frustration.
So, here’s to you, fibromyalgia warriors, bravely battling through the medical maze armed with nothing but your pain and a healthy dose of sarcasm. After all, if laughter is the best medicine, then you’re practically immortal. Til next time gang, take care of yourself, and each other!
I forgot to add, George says ‘hey whats up?’ He’s off tearing shit up at the moment but he’s not going away lol.
Hi All! In honor of it being Fibro Awareness month, I felt like laying some facts about fibromyalgia and gaslighting. More common than you think and even the smart ones fall for our brains tricks.
First off, fibromyalgia is like the ninja of chronic illnesses—it’s stealthy, it’s everywhere, and it hits you when you out of the blue. One day you’re fine, and the next, you feel like you’ve been hit by a truck made of exhaustion and pain.
Oh, and let’s talk about the diagnosis game. Picture yourself as a contestant on a really crappy game show where the prize is knowing why your body hates you. Your doctor throws every test in the book at you, from blood work to MRIs, all while you’re sitting there thinking, “Can we speed this up? My body feels like it’s been through a wood chipper.” Every new med comes with a side effect that you have to chase with another pill, its a cycle.
And here’s a fun fact: fibromyalgia isn’t just about pain. Nope, it’s a whole package deal. You get fatigue that makes you feel like you’ve run a marathon on zero sleep, brain fog descends to wreak havoc, and sleep problems that make you envy a cat’s ability to nap anywhere, anytime.
But wait, there’s more! Fibromyalgia loves company. It’s best buds with conditions like irritable bowel syndrome (IBS), migraines, and depression, because why deal with one pain in the butt when you can have a whole party of them?
Picture this: you’re dealing with this condition called fibromyalgia, where you’re in pain all over, tired as hell, and your brain feels like it’s stuck in a fog. But here’s the kicker: there’s no fancy test that says, “Yep, you’ve got fibromyalgia!” So, you’re left playing a guessing game with your doctor, ruling out everything else under the sun.
Now, imagine dealing with all that uncertainty. You start wondering, “Am I just making this up? Is my body punking me?” Do you know how many times in a day I try and tell myself that I don’t hurt? It’s like gaslighting yourself—convincing yourself that maybe the pain is all in your head because there’s no lab result to back it up.
And let’s not forget the joy of visiting the doctor’s office. You pour your heart out about how much you hurt, how tired you are, and how your brain feels like it’s on vacation. You bring witnesses, you show how you’ve logged all the symptoms. But instead of a pat on the back, you get a shrug and a “Well, your tests look fine.” or ‘Well that’s a common symptom of Fibro’
So, yeah, it’s a real treat trying to convince yourself and others that what you’re going through is legit when there’s no shiny test result to prove it. Its why they call it an invisible illness. But fibromyalgia is as real as it gets, even if the medical world hasn’t quite caught up yet. Thats it for tonight guys, take care of yourself and each other
WannaBeNormal 